My Journey

SurgeriesMy Journey

Skull cracken again – Surgery #13

So for the last year, I haven’t felt real good consistently.  Most mornings I wake up with nausea, my vision even though I’ve...

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My JourneyComplicationsRehab

Why do I walk funny or stumble some times?

As expected, I did experience some deficits (balance and coordination issues) as the result of the initial tumor surgery.  Primarily, my...

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My JourneyComplicationsRehab

No, I am not a Pirate – why the eye patch?

In addition to the right side deficits, the surgery also affected my vision – right eye specifically.  After surgery, I experienced...

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SurgeriesMy JourneyComplications

Uncrossing the eyes almost – Surgery #12

For the last year, I have had double vision left to right and up and down. This is due to 6th nerve palsy – my 6th cranial nerve is...

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SurgeriesMy Journey

Checking ICPs – Surgery #11

Since I started back at school in August, each day I woke up with a stomach ache.  It progressively got worse to the point in which I had...

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My JourneyRehab

Rest, PT and trying to just be a kid

Following Gamma Knife, my focus was on rest, PT and healing so I could be ready to start school in August.  I went to PT 4 days a week,...

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SurgeriesMy Journey

Gamma Knife – remove some left over tumor – Surgery #10

I had outpatient surgery/treatment on May 31 at San Antonio Hospital to treat some residual tumor tissue that was not removed from the...

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SurgeriesMy Journey

Tube Free! – Surgery #9

On May 1, I had outpatient surgery to remove the stent, the catheter and PIC line.  This actually was the first procedure I had that...

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SurgeriesMy JourneyComplications

Lack of Sun and Vitamin D not good – Surgery #8

On April 14 – not so Good Friday – I was supposed to have an easy surgery to remove the balance of the kidney stones and the stent...

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My Journey

At home – again after 20 days in PICU

I was released from the hospital on March 22.  I had to go home with a PIC line in my arm so I could get IV antibiotics through May 1. ...

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