My Journey

SurgeriesMy Journey

Another Brain Surgery – #5

March 4th was a bad day where I was really sick and I got to a point that my ICPs were so high, that I began to reach a critical level from...

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SurgeriesMy JourneyComplications

Kidney Issue – Surgery #4

On March 3, I had a 2 hour kidney surgery at Choc – by Dr Wehbi, one of the best pediatric urologist in the world – to remove...

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SurgeriesMy JourneyComplications

Back to the Hospital but with some different issues

In addition to not feeling good for a few days, on March 2, I had some pain on my right side, and when I went pee, there was some blood in...

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SurgeriesMy Journey

Normal for the most part… for a few weeks at least…

For the next few weeks, I started MY normal routine.  Each day I got IV antibiotics every 8 hours – 6am, 2pm and 10pm.  But, one thing...

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SurgeriesMy JourneyComplications

Surgery number #3

Your body produces CSF continuously to protect your brain.  As you produce more, your ICP goes up. As your brain excretes/eliminates it,...

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SurgeriesMy Journey

Cleared for Surgery #3

In order to be cleared for surgery to fix my ICP issue, I had to be infection free.  To be cleared, Infectious Disease had to pull 3 CSF...

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SurgeriesMy JourneyComplications

Pressure relief – Surgery #2

The only way to relieve the pressure and test to see what was going on was to put in an External Ventricular Drain (EVD) in my skull....

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SurgeriesMy JourneyComplications

Fighting the infection in my brain

Enter a new department to help with my case – Infectious Disease (ID).  Dr. Arrieta is the president of the medical staff and division...

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SurgeriesMy JourneyComplications

Not just a ventricle issue… battling three issues now…

Upon sampling the CSF it was discovered I acquired bacterial meningitis during the initial surgery.  What that meant, is I had an...

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SurgeriesMy JourneyComplications

Back to Choc for the second time

I was readmitted to the hospital February 2.  Upon admission to the hospital I had a MRI, and it showed my ventricles in my brain were...

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