My Journey

My Journey

At home – again after 20 days in PICU

I was released from the hospital on March 22.  I had to go home with a PIC line in my arm so I could get IV antibiotics through May 1. ...

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SurgeriesMy Journey

Surgery #7 – Shunt

The surgery to insert the Shunt was performed on March 20.  The good thing about the Shunt surgery, is that I only needed to stay a day or...

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SurgeriesMy Journey

Surgery #6 – EVD Redo

When you have an EVD or any type of device to help your body function for a while you sometimes need to have it changed so you don’t...

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SurgeriesMy Journey

Another Brain Surgery – #5

March 4th was a bad day where I was really sick and I got to a point that my ICPs were so high, that I began to reach a critical level from...

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SurgeriesMy JourneyComplications

Kidney Issue – Surgery #4

On March 3, I had a 2 hour kidney surgery at Choc – by Dr Wehbi, one of the best pediatric urologist in the world – to remove...

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SurgeriesMy JourneyComplications

Back to the Hospital but with some different issues

In addition to not feeling good for a few days, on March 2, I had some pain on my right side, and when I went pee, there was some blood in...

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SurgeriesMy Journey

Normal for the most part… for a few weeks at least…

For the next few weeks, I started MY normal routine.  Each day I got IV antibiotics every 8 hours – 6am, 2pm and 10pm.  But, one thing...

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SurgeriesMy JourneyComplications

Surgery number #3

Your body produces CSF continuously to protect your brain.  As you produce more, your ICP goes up. As your brain excretes/eliminates it,...

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SurgeriesMy Journey

Cleared for Surgery #3

In order to be cleared for surgery to fix my ICP issue, I had to be infection free.  To be cleared, Infectious Disease had to pull 3 CSF...

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SurgeriesMy JourneyComplications

Pressure relief – Surgery #2

The only way to relieve the pressure and test to see what was going on was to put in an External Ventricular Drain (EVD) in my skull....

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