Here’s brief score card from the past 3 years. It includes the surgeries, the medications I’ve been on and how they affected me, along with the various things I am doing to rehab.
If you are in a similar situation hopefully this helps to give you an idea of some of the things you may encounter or have to deal with.
February 2, 2017 – Surgery #2 – Brain – External Ventricular Drain (EVD)
February 14 2017 – Surgery #3 – Brain – Endoscopic Third Ventriculostomy (ETV), catheterization of cerebral aqueduct
March 3, 2017 – Surgery #4 – Kidney stone removal and stent
March 4, 2017 – Surgery #5 – Brain – EVD and redo of ETV
March 16, 2017 – Surgery #6 – Brain – Replace EVD
March 20, 2017 – Surgery #7 – Brain – Ventriculoperitoneal (VP) Shunt Placement
April 14, 2017 – Surgery #8 – Kidney – 4 hour stent removal and insertion of catheter
May 1, 2017 – Surgery #9 – Kidney – removal of stent, urinary catheter and PIC line
May 31, 2017 – Surgery #10 – Brain – Gamma Knife – radiation treatment of residual tumor
October 9, 2017 – Surgery #11 – Brain – ICP monitor insertion
November 27, 2017 – Surgery #12 – Eye – Strabismus – alignment of right eye
January 22, 2018 – Surgery #13 – Brain – Craniotomy – cyst fenestration (removal of part of the cyst wall so it can drain) and scar tissue removal
March 12, 2018 – Medically cleared with no restrictions!
Since March I have been pretty healthy. I have been training for football and Rugby along with riding my mountain bike. My regimine includes agility work outs, boxing, PT, acupuncture, a clean diet, and supplements from my Eastern Medicine Dr.
Morphin- pain – nausea and vomiting instantly, allergic reaction and splotchy torso
Dillauded – pain – best for pain, but caused hallucinations and made me delusional
Fentnol – pain – made me drowsy, cranky, and didn’t like the way it made me feel
IV Tylenol – pain – best for pain if you can’t keep food down, but really expensive
Propofol – anesthesia – works amazing if done right, most times I woke up and had no nausea. If you come out of a surgery and feel great, make sure the next time you have sugery the anesthesiologist knows your file and does it exactly the same way.
Versed – anesthesia – did not like it – made me drowsy and angry
Karfate – for acid reflux and nausea
Kytrel – for nausea
Zophran – for nausea – clogs you up – took before Morphin after surgery #1
Benedril/Regalin combo – nausea and vomiting – made me restless and agitated – also knocked me out so I could sleep through pain
Colace – stool softener – antibiotics and steroids clog you up – better off going right to the laxitive
Muralax – laxative – antibiotics and dehydration clog you up
Decadron – steroid for brain swelling – bad for long term use and you have to slowly come off it – makes you hungry, you’ll gain weight and get a fat face
Predusone – steroid for brain swelling – gives you a fat face with long term use
Cefepime – IV antibiotic – bacterial meningitis – causes your hair to thin, makes your teeth yellow and possibly contributed to the cause of my kidney stones
Meropenem – IV antibiotic – bacterial meningitis – gave rash all over torso
Oxybutynin – for bladder spasms post kidney stone surgery
Vitamin D – needed as a supplement – lack of sun light from being in the hospital can help cause kidney stones and other issues
Nexium – Acid reflux and nausea – only 2 week course and can cause issues because it inhibits stomach acid production
Probiotics – helps the stomach – lots of wear and tear from antibiotics and other medications – can get the same benefit from live cultures (yogurt) and fermented veggies such as sauerkraut and kimchi
Physical Therapy – 2-3 times per week – balance and coordination, had to learn to walk and reuse right arm and get the brain, nerves and muscles firing together
Occupational Therapy – 2-3 times per week – had to relearn fine motor skills – writing, eating with utensils, brushing teeth, etc.
Acupuncture and cupping – 2 times a week – keep the pathways open and help healing
Hyperbaric Oxygen Therapy – tried for a few weeks for brain recovery, but had to address other issues. It is not covered by insurance for brain trauma, but is for infection recovery
Fresh air – spending time outside to get fresh air and vitamin D
Mountain Biking – taking pretty easy rides for now to regain my balance and get some climbing in for fitness
Football – doing light workouts, weights and agility as best I can – I will ramp back up in late March once my head heals from the January 22 surgery
Rugby – running and passing – working on my fitness and running along with hand/eye coordination