My Journey

My Journey • Rehab

06/01/2017

Rest, PT and trying to just be a kid

Following Gamma Knife, my focus was on rest, PT and healing so I could be ready to start school in August.  I went to PT 4 days a week,...

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Surgeries • My Journey

05/31/2017

Gamma Knife – remove some left over tumor – Surgery #10

I had outpatient surgery/treatment on May 31 at San Antonio Hospital to treat some residual tumor tissue that was not removed from the...

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Surgeries • My Journey

05/01/2017

Tube Free! – Surgery #9

On May 1, I had outpatient surgery to remove the stent, the catheter and PIC line.  This actually was the first procedure I had that...

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Surgeries • My Journey • Complications

04/14/2017

Lack of Sun and Vitamin D not good – Surgery #8

On April 14 – not so Good Friday – I was supposed to have an easy surgery to remove the balance of the kidney stones and the stent...

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My Journey

03/22/2017

At home – again after 20 days in PICU

I was released from the hospital on March 22.  I had to go home with a PIC line in my arm so I could get IV antibiotics through May 1. ...

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Surgeries • My Journey

03/20/2017

Surgery #7 – Shunt

The surgery to insert the Shunt was performed on March 20.  The good thing about the Shunt surgery, is that I only needed to stay a day or...

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Surgeries • My Journey

03/16/2017

Surgery #6 – EVD Redo

When you have an EVD or any type of device to help your body function for a while, you sometimes need to have it changed so you don’t...

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My Journey • Surgeries

03/04/2017

Another Brain Surgery – #5

March 4th was a bad day where I was really sick and I got to a point that my ICPs were so high, that I began to reach a critical level from...

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Surgeries • My Journey • Complications

03/03/2017

Kidney Issue – Surgery #4

On March 3, I had a 2 hour kidney surgery at Choc – by Dr Wehbi, one of the best pediatric urologist in the world – to remove...

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Surgeries • My Journey • Complications

03/02/2017

Back to the Hospital but with some different issues

In addition to not feeling good for a few days, on March 2, I had some pain on my right side, and when I went pee, there was some blood in...

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